Our little man, Will is almost a week old. In one sense it seems like the week has flown by, but in another it has seemed like an eternity. Again, we would like to thank everyone for your support, well-wishes, prayers, and stories.
Overall, Will is continuing to progress nicely. Every hour and every day is a step in the right direction and we continue to keep our fingers crossed.
Just like any newborn, he has lost about 10% of his body weight, but it will hopefully come back this week. He does have an appetite and he is now getting the “liquid gold” through a tube every three hours and the amount increases daily. Today we hope to get to 13 ml per meal, as there is a one milliliter increase every other feeding. The goal is to get to about 25 ml per meal and then his IV for extra fluids will be removed.
His breathing is just fine and the oxygen intake is stable. A few times per day, he gets a little too comfortable and he has a “Brady.” This is when the heart rate drops significantly and a little stimulation is needed. Luckily, he bounces back quickly and his oxygen level stays high during the episode. To help keep him stimulated and to avoid the dips, they give him some caffeine. A little espresso for Will….
The biggest news to report, which we received today, is that the results of his brain scan that took place this morning showed NO bleeding anywhere. This is fantastic as generally when there is blood it means there is a much greater likelihood of some long-term neurological damage down the road.
The tests did show that he has one slightly enlarged ventricle in the brain, which we have been told is not a huge deal. He also has a little fluid in his kidneys, which is also not that uncommon in boys. They will monitor both of those things moving forward.
Again, this is reminder to us to take it day by day and not think so long term. I am enjoying being home and spending time with Ava. It is important for me to relax which will speed up my recovery…. Though that is not my forte!
Thanks again for all the support. It helps us to stay strong and optimistic.